An Interview with Professor Ari Zimran, M.D, Head of the Gaucher Clinic at the Shaare Zedek Medical Centre in Jerusalem.
Ahead of SSIEM 2016, we had the pleasure of interviewing Professor [...]

Our involvement at SSIEM
This week we are at the SSIEM congress in Rome to highlight the latest information on lysosomal storage diseases (LSDs). Events like the SSIEM (Society [...]

Today, May 16, 2016, is hae day :-), a Global initiative from international patient group HAEi to raise awareness of hereditary angioedema (HAE) among the general public and medical community. [...]

Meet Gina, a 56-year old mother to E (Fabry patient), based in Ontario, Canada. After five years of jumping through hurdles she finally received a diagnosis of Fabry disease for her then [...]

As a child, did you ever make paper planes and play with your friends outside? Well, here’s your chance to bring back your childhood memories while spreading awareness about [...]